Dr Dorcas Kamuya
Ethical issues for biobanking in LMICs
Biobanking, the sharing of samples for research purposes, is an emerging area in LMICs. The issue of broad, un-specified consent needs to be addressed, as well as consent given by parents on behalf of their children. We also need to ensure that biobanking doesn’t increase the inequity between developed and developing countries, and that community perceptions about biobanking ultimately feed into policies, guidelines and ethical frameworks.
- Chair: Health Systems and Research Ethics Department
I am a Wellcome Trust Society & Ethics fellow, conducting empirical ethics research examining if and how communities could be engaged on complex ethical topics, with bio-banking as a case study. Other areas I am involved include developing ethical frameworks on Controlled Human Infection Studies for LMIC. As a social science researcher in LMIC, my research interests span two interrelated areas: the value of community and public engagement in health research, and ethical dilemmas for frontline research workers. I am primarily based at the KEMRI-Wellcome Trust Research Programme (KWTRP) in Kilifi, Kenya. I currently chair the Health Systems and Research Ethics Department, and co-lead the Health Systems Research theme in the Programme.
I am a member of several collaborative initiatives including Board Member of International Association of Bioethics (IAB); Global Health Bioethics Network, H3Africa Community Engagement working group, Africa Ethics Working Group (AEWG) on Neuro-ethics research, among others. My research work is shared through a growing list of publications, presentations in many national and international meetings and conferences.
Ethical considerations around volunteer payments in a malaria human infection study in Kenya: an embedded empirical ethics study.
Chi PC. et al, (2022), BMC medical ethics, 23
Pandemic preparedness and responsiveness of research review committees: lessons from review of COVID-19 protocols at KEMRI Wellcome Trust Research Programme in Kenya
Kamuya D. and Kinyanjui S., (2022), Wellcome Open Research
Strengthening the Health System as a Strategy to Achieving a Universal Health Coverage in Underprivileged Communities in Africa: A Scoping Review.
Jaca A. et al, (2022), International journal of environmental research and public health, 19
Understanding the benefits and burdens associated with a malaria human infection study in Kenya: experiences of study volunteers and other stakeholders
Chi PC. et al, (2021), Trials, 22
A scoping review of considerations and practices for benefit sharing in biobanking
Sudoi A. et al, (2021), BMC MEDICAL ETHICS, 22