Dr Dorcas Kamuya
Ethical issues for biobanking in LMICs
Biobanking, the sharing of samples for research purposes, is an emerging area in LMICs. The issue of broad, un-specified consent needs to be addressed, as well as consent given by parents on behalf of their children. We also need to ensure that biobanking doesn’t increase the inequity between developed and developing countries, and that community perceptions about biobanking ultimately feed into policies, guidelines and ethical frameworks.
- Chair: Health Systems and Research Ethics Department
I am a Wellcome Trust Society & Ethics fellow, conducting empirical ethics research examining if and how communities could be engaged on complex ethical topics, with bio-banking as a case study. Other areas I am involved include developing ethical frameworks on Controlled Human Infection Studies for LMIC. As a social science researcher in LMIC, my research interests span two interrelated areas: the value of community and public engagement in health research, and ethical dilemmas for frontline research workers. I am primarily based at the KEMRI-Wellcome Trust Research Programme (KWTRP) in Kilifi, Kenya. I currently chair the Health Systems and Research Ethics Department, and co-lead the Health Systems Research theme in the Programme.
I am a member of several collaborative initiatives including Board Member of International Association of Bioethics (IAB); Global Health Bioethics Network, H3Africa Community Engagement working group, Africa Ethics Working Group (AEWG) on Neuro-ethics research, among others. My research work is shared through a growing list of publications, presentations in many national and international meetings and conferences.
Understanding the benefits and burdens associated with a malaria human infection study in Kenya: experiences of study volunteers and other stakeholders
Chi PC. et al, (2021), Trials, 22
A scoping review of considerations and practices for benefit sharing in biobanking
Sudoi A. et al, (2021), BMC MEDICAL ETHICS, 22
The Africa Ethics Working Group (AEWG): a model of collaboration for psychiatric genomic research in Africa
Kamuya D. et al, (2021), Wellcome Open Research, 6, 190 - 190
The essential role of DSMBs in ensuring the ethics of global vaccine trials to address COVID-19.
Eckstein L. et al, (2021), Clinical infectious diseases : an official publication of the Infectious Diseases Society of America
Considering the Importance of Context for Ethical Practice on Reimbursement, Compensation and Incentives for Volunteers in Human Infection Controlled Studies
Chi PC. et al, (2021), AMERICAN JOURNAL OF BIOETHICS, 21, 40 - 42